I wonder which is better: to be busy with family and friends or to stay home and "enjoy" alone time. It doesn't seem to matter because in either scenario, without any warning, I can be on the verge of tears. The thought of spending the rest of my life without Andy is so painful. I wish I could keep from thinking about that...but that's impossible.

I'm trying to keep busy. Last weekend I had Asher over for 2 nights, then took him home on Sunday. It was his birthday on Jan. 31. He turned 11 and it was such a pleasure to have him. He's fun-loving and a good conversationalist. We played 22 games of "greedy" and watched 4 movies, as well as took a very nice long hike at Palmyra Cove Nature Center. It was pretty cold but the sun was shining and we were dressed warm.

I drove Asher back Sunday morning so I went to church with the family, then we celebrated his birthday with a very nice lunch/dinner before I came back home.

And yesterday we celebrated two more birthdays: Cole turned 3 on Feb. 1 and Kasey will be 5 on Feb. 8. Dawn made a Barbie cake that both kids were excited about, yes, even Cole. Probably in another year or so, she'll have to attempt a Super-Hero cake for him.

I'm trying to keep myself centered on Scripture and the love of the Lord for me, His child. I recently subscribed to the Desiring God website, where they send me daily articles. This morning, there was a feature by Vaneetha Risner that ministered to me. The Executive Editor of Desiring God introduced her article with these words:

From psalms and prophecies to epistles, the Bible did not come to people on extended vacations. They were suffering. Life was hard. They were desperate for a word from God.

I’m thankful when God meets me on happy days. But I have found it to be true, time and time again, that the Bible really comes alive when I’m desperate. When I’m hurting. In the worst of times. 

Vaneetha Risner has discovered something similar. “When I opened the Bible [in desperation], I needed God to feed me. . . . The more I had to search, the sweeter the manna tasted, the deeper the words penetrated, and the more precious the truths became.” Perhaps you’ve tasted something similar. Glean from Vaneetha’s story of learning to read the Bible through tears.

Her name sounded familiar to me because I had read a book she had written: The Scars That Have Shaped Me. She writes: "My scars remind me that God is sufficient and that physical perfection is not our goal. A life lived to God's glory is infinitely more valuable...My scars signify healing. And even though my initial flesh wounds have healed, there is yet a deeper healing in acceptance."

She references Michael Card's song, Known by the Scars:

The marks of death that God chose never to erase
The wounds of love's eternal war
When the kingdom comes with its perfected sons
He will be known by the scars.
 Songwriters: Michael Card

Known by the Scars lyrics © Sony/ATV Music Publishing LLC, Warner/Chappell Music, Inc

Vaneetha reminds us that "God chose not to erase these marks of death -- the wounds of his love for us -- so our Savior will always be known by his scars. Rather than physical imperfections, Jesus's scars are breathtakingly beautiful. They represent his love and our salvation."

I spent a couple of weeks reading The Joy of Fearing God by Jerry Bridges. One of his chapters focused on the "stewardship of pain." This was interesting to think about and I liked his explanation..."If we believe God is sovereignly in control of all circumstances of our lives, then our pain is something He has given to us just as much as our time or talents or treasure. He has entrusted the pain to us as stewards to be used for His glory. How can we be good stewards of the pain God gives us? One way...is to trust Him even though we don't understand the purpose of the pain. Another way is to ask for and experience the sufficiency of His sustaining grace, as Paul did with his thorn in the flesh, to the extent that we can actually rejoice in our weaknesses so that Christ's power may rest on us (2 Corinthians 12:7-10). We can then, as God gives opportunity, testify to the sufficiency of His sustaining grace. In doing so, however, we want to seek the glory of His grace, not the glory of our ability to endure."

At first I questioned the phrase that God gives us pain. As I reflected on that, though, the Lord reminded me that when Job was tested, he was not told of the conversation between God and Satan. But he praised God, trusting Him and worshiping Him with these words: "The Lord gave and the Lord has taken away; may the name of the Lord be praised." The God gives a commentary on this statement by adding in the very next verse that "In all this, Job did not sin by charging God with wrongdoing." (Job 1:21 & 22)

And in the next chapter, after Job's wife counsels him to curse God and die, Job answers her by saying: "Shall we accept good from God and not trouble?" And again, God comments that "in all this, Job did not sin in what he said." (Job 2:10)

People often use suffering as an indictment against God, but in reality, it is our own sin that has cursed our world. Adam and Eve in the Garden chose to disobey, even though God warned them that to do so would result in death. We live with pain and suffering here, but even though it's our, and all of humankind's, fault, He does not leave us in this sorry, pitiful condition."God demonstrates his own love for us in this: while we were still sinners, Christ died for us." (Romans 5:8)

I continue to be amazed at His love for me. I was reading in Isaiah 43 and kept my Bible open all week to this passage so that I could read and ponder it every day.

Isaiah 43:1-5
"Fear not, for I have redeemed you; I have summoned you by name, you are mine.
When you pass through the waters, I will be with you;
and when you pass through the rivers, they will not sweep over you.
When you walk through the fire, you will not be burned; the flames will not set you ablaze.
For I am the Lord, your God...Since you are precious and honored in my sight, 
and because I love you...Do not be afraid, for I am with you."

Isaiah wrote these words to the Israelites as they were going into captivity, but they apply to us today, as well, because this is the character of God and how He deals with His children.

How good is the God we adore!

Staff building...bury the hatchet...do those two phrases go together? Hmmm...depends on the staff and what you mean by burying the hatchet.

It was pastor's idea. All the pastors, interns and office staff did a 5th Wednesday special activity together which happened to be at a facility called "Bury the Hatchet." It's really more a guy thing, but I did participate, along with two other women. I confess up front that I did not do very well. In fact, I did pathetically horrible. I could get the hatchet to hit the target, but I didn't have enough strength to get it to stick, so it hit, then fell off. 

I knew from the beginning I had no chance of doing well but it was an interesting activity and the comradery and competitiveness was fun to be part of. In a way, it wasn't really very fair because after all, 1) I'm a lot older than the other participants; 2) I'm female with no testosterone; 3) I'm shorter than everyone else. So those are my excuses and I'm sticking to them.

I was able to spend some time with Kasey on Tuesday. I met a friend for coffee in the morning, then went and picked up Kasey. I brought her back to my house for some girl time. We bonded by playing Candyland and dressing up like princesses.

She allowed me to braid her hair which is fun for me. (A few days later, she still had those braids so I guess it was fun for her, too.)

We have a lot of birthdays this time of year. Asher's is January 31. He turned 10. I went and picked him up on Friday and brought him back to the house. What a delightful boy he is. I had such a good time with him one on one. He loves the game of Greedy, and we played 10 games in the night and day he was with me. We played a few other games just to add a little variety, but we always came back to Greedy. 

It was freezing cold on Saturday but we had to do our traditional birthday hike. We dressed warmly and went over to Long Bridge Park. The outside temperature was 24 degrees. Brrr. There was ice along the shore of the Rancocas Creek, which was fun for Asher to  step on and try to break. Then of course, he had to try using the broken pieces like skipping stones. I don't know how he could stand to hold those ice pieces but they didn't seem to bother him.

After our hike, we stopped in to see Andy. Asher played three pieces on the piano for us to enjoy. Then of course, we had to avail ourselves of the ice cream parlor.

The rest of the day was spent in more games of Greedy! I'm always intrigued at how the kids can occupy themselves. I needed to spend some time in preparing the evening meal when everyone would be joining us. So Asher stayed busy by arranging the tri-omino tiles in various designs to bring about different results.

The rest of the family arrived by 4:00 pm - all the kids, spouses and grandkids. It was wild and crazy. After the meal of baked ziti, two kinds of salads, homemade rolls, and blueberry dessert, we were entertained by Tommy and Dawn, as we tried to determine who had the biggest biceps! Laughter is good medicine, right?

And one more party today...this one for Kasey and Cole at Dawn's house. Cole's birthday was Feb. 1 and Kasey's will be Feb. 8, one week apart, celebrating ages 2 and 4. They got so many presents. It was like Christmas all over again.

I am so grateful for the family God has blessed me with. It makes my heartache bearable.

I'm currently reading 90 Days of God's Goodness by Randy Alcorn. I always appreciate his perspective. 




On Day 18, he referenced the two men walking on the road to Emmaus with Jesus after the resurrection. He compared their situation to our own. "Many of us, without realizing it, have walked the Emmaus road. Sorrow overwhelms us. Questions plague us. We wonder where God is...when all along he walks beside us."

Isn't that the truth? He has promised to never leave us, he is always with us, his Spirit lives within us. So even in our darkest hours, even though we may not feel like he is with us, he still is. This is a great comfort to me. And on another day (page 73), Randy adds that "no matter how bad the present, an eternity with Christ in Heaven will completely overshadow it." Some day when we're in our Savior's presence, we'll be able to say that the things we're going through now are "light and momentary troubles." 

In another day's reading, Randy reminds us that there will be eternal triumph over temporary suffering (day 22). "The Cross is God's answer to the question, 'Why don't you do something about evil?' God did do something...and what he did was so great and unprecedented that it shook the angelic realm's foundation. It ripped in half, from the top down, not only the temple curtain but the fabric of the universe itself...Evil and suffering formed the crucible in which God demonstrated his love to humankind. His love comes to us soaked in divine blood...God does not merely empathize with our sufferings, He actually suffers. Jesus is God ("the exact representation of His being," Hebrews 1:3). What Jesus suffered, God suffered. God allowed and ordained Jesus' temporary suffering so he could prevent our eternal suffering."

This world is not what it was meant to be
All this pain, all this suffering
There's a better place
Waiting for me
In Heaven

Every tear will be wiped away
Every sorrow and sin erased
We'll dance on seas of amazing grace
In Heaven
In Heaven

 I'm goin' home
Where the streets are golden
Every chain is broken
Oh I wanna go
Oh I wanna go
Home
Where every fear is gone
I'm in your open arms
Where I belong
Home

Lay down my burdens, I lay down my past
I run to Jesus, no turning back
Thank God Almighty, I'll be free at last
In Heaven
In Heaven
I'm goin' home
Where the streets are golden
Every chain is broken
Oh I wanna go
Oh I wanna go
Home
Where every fear is gone
I'm in your open arms
Where I belong

Blinded eyes will finally see
The dead will rise on the shores of eternity
The trump will sound, the angels will sing
Hallelujah, Hallelujah
I am goin' home

Where the streets are golden
Every chain is broken
Oh I wanna go
Oh I wanna go
Home
Where every fear is gone
I'm in your open arms
Where I belong
Where I belong

I'm goin' home
I'm goin' home
I'm on my way home
I'm goin' home 
 Writer(s): Chris Tomlin, Jason Ingram, Jonas Myrin, Ed Cash 

In a conversation I was having with someone, they were remembering how kind and gentle Andy was/is. Then they asked if he ever got angry. The only incident I could remember at the time occurred in the early days of our marriage when we were in seminary, living in Portland, Oregon. One day, our car had a flat tire and Andy went out to change it. One of the lug nuts was especially tight and he couldn't get it. In frustration, he kicked the tire. I thought it was funny then, and I think it's funny now. Kicking an inanimate object does not resolve the problem, it only hurts the kicker! 

This morning another incident came to my mind. When the girls were little, we had a cat. We named her GG because she was feisty and a GoGetter. We had her from the time she was a kitten, and as she got older, she developed a very bad habit of pouncing on Amy, the baby. One day, Amy was coming down the stairs, when we noticed GG crouching at the bottom, waiting for her. Sure enough, when Amy got to the bottom, GG pounced. Then Andy went into action. He was so angry at this cat picking on the baby, he picked her (the cat!) up and threw her across the room. The older girls and I were aghast, but he was adamant that no cat is going to hurt his baby. 

Even though he was angry, his anger was against the injustice of others picking on helpless, innocent victims. He had a strong sense of justice for the underdog. There were several times that he helped people in our church who were being victimized, by setting up appointments with a lawyer, even accompanying them and paying for the attorneys' fees. 

Over the years he had related to me stories of how he protected his brothers from bullies when he was a kid. Recently his brother told me he remembers Andy punching another guy in the mouth. This guy was very much older than Andy but I'm sure he did or said something to bully someone else and it was more than Andy could take. 

I'm glad I have these memories. It makes the current situation more bearable. Our daughters have been texting me pictures of their dad that they have in their memory banks or scrolling on their computers. I love this one of Andy, estimated to be about 15 years ago. He looks so young!

Andy is holding a puppy, not a cat!

Asher imitating his Pop-pop, several years BA (before Alzheimers)

This week was difficult for me in several ways. Andy seemed to be taking another step downward in the progression on his disease. Ironically, I had called the nurse at his facility last week to ask her to have his care givers give Andy cues when he is showering. I told her that he needs to be told what to do, but he can follow directions. This was ironic because only the day after I had this conversation with the nurse, I had occasion to have Andy take a shower. I got him in the shower stall and started giving him cues. But it was obvious he had no idea what I was telling him. Simple things like: get the soap, wash yourself, shampoo your hair. Nope - "no comprende." 

Another thing I noticed this week is that he seemed to be sleeping a lot. When I arrived at 5:00 to help him with his dinner, I would have to wake him up. When dinner was finished, we would go back to his room, he would lie down on the bed and fall asleep while I was reading to him. Several of those nights, I would just sit there with him for a while before finally getting up to leave. He didn't wake up as I moved around the room. This seemed unusual for him.

But the last couple of nights he has been more awake and alert, even staying awake through two whole chapters as I read to him. So there are the ups and downs, the uncertainties of the disease, but it helps to remember that God never changes. He is still faithful, His love is unfailing, He is full of grace and mercy toward His children.

As I woke on Wednesday morning, I was reviewing a verse I had recently memorized: Hebrews 4:16. "Let us then approach God's throne of grace with confidence, that we may receive mercy and find grace to help us in our time of need." I say this verse to myself, and then I say to God, "and I am sooooo needy, but what a gift, that I can come to You with confidence and You will give me the grace I need for this day."

As a confirmation to my thoughts, Paul Tripp's Wednesday's Word was such a blessing (this particular post is not uploaded on his website yet). He said there are two words God never says to His children. His whole post was a poem and I eagerly kept reading until He mentioned the two words we'll never hear from God: "Go away."  I think of this sometimes, how we can become impatient with our own children or other people when they are needy, but God never becomes impatient with us. He is the perfect parent. He wants us to run to Him when we are desperately needy. 

Another day this week, when I got to work, I opened the mail. There was an envelope addressed to me and when I opened it, there was $120 in cash enclosed with a note that they were praying for me and I could use the money in whatever way I wanted. How kind of the Lord to give me this encouragement because later in the day, I received word from another source that my money was running out, I needed to get in touch with my lawyer and get working on my Medicaid application. The money and card I received was confirmation that He is working on my behalf and hasn't forgotten me.

 
I am tempted to worry and fear the future, but He comforts me with his presence, his word and his people along with evidences that he is going to provide. I understand that this trust does not negate my need for action when it is required. But I want to make sure I am listening to God's voice and not rushing ahead of Him and trying to make my own decisions.

I feel this is a test for me. Will I commit my way to the Lord and let him do the work? Our faith is precious - more precious than gold that is refined by fire. I am being refined and I want God to be pleased with my faith. This is not an easy test for me. I confess that I think of practically nothing else. At times, it is all-consuming, along with Andy's physical condition. 

 

I am reading again, The Rest of the Gospel, by Dan Stone and David Gregory.  

 

 

 

I can't say enough good about this book. He really hammers away at the truth of Jesus living his life through me. I am a clay pot, just a vessel, for Jesus to live through. We are to be in "union with the Greater and let Him express Himself though the lesser. We are vessels--containers of the life of God. But we are not the contents of the vessel. God is. We cannot produce His life. We can only express it." (page 115)

How prone we are to forget the truth of the gospel. It's not just that we are forgiven, although that would be good enough. But we've also been given the righteousness of Jesus. When God looks at me, He sees Jesus. Amazing. I hope I never get over the beauty and wonder and awesomeness of this truth.

Our pastor calls this the two sides of the cross. On the one side, Jesus took my sins on Himself; on the other side, He gave me His righteousness. 

 

2 Corinthians 5:21 ~ "God made Him who knew no sin to be sin for us, so that in Him we might become the righteousness of God." 

Galatians 2:20 ~ "I have been crucified with Christ and I no longer live, but Christ lives in me. The life I live in the body, I live by faith in the Son of God, who loved me and gave Himself for me."

2 Corinthians 4:7 ~ "But we have this treasure (Jesus) in jars of clay to show that this all-surpassing power is from God and not from us."

 

As much fun as it is to have all the grandkids together - all in one place, it's hard to spend any one-on-one time with them since they're more interested in playing with each other. That's good because it's happy to see them enjoying their cousins. But years ago, when the kids began coming fast and furiously, we decided to start the tradition of having each child over to spend the night and the next day on their birthdays. This has been a lot of fun over the years but because of Andy's illness and all the care he required from me, we had to suspend that tradition all last year.

Now that Andy's being cared for by Care One Harmony Village, I decided if the kids wanted to, I'd like to have them over again this year. I wasn't sure how the boys would feel about that since their Poppop wouldn't be here. After all, he was a lot of fun and would ride the bikes with the boys, set up a target and shoot the bb gun or the bows and arrows. Would the boys be happy spending the time with me??? 

I floated the idea and question to Christy, and there was no hesitation from Asher. His birthday is the first in the year, and he was so excited about the prospect of coming over to Grammy's house. He made up his list of what he wanted to do while here with me.

I'm glad he included "go to sleep" on the list! We had a wonderful time together, watching a movie, playing games, eating ice cream (this was an extra not on the list)

and taking a hike.

After lunch we went over to visit with Andy. Asher played a few pieces on the piano for him and the other residents who happened to be out in the lobby.
 

We had a wonderful time. Asher said it "was the best birthday ever!" And it was a marvelous break from the routine of my life - a definite bright spot.

Asher had requested strawberry pie for his dessert, rather than a cake. I offered to make it but wasn't too happy with the way it turned out the previous time I had made it. Then a couple days before, I saw an idea that I thought might work better, making a shortbread crust instead of a regular pie crust. That actually worked out really well for a couple of reasons. One pie for all of us just isn't enough unless you cut the slices really small and thr shortbread crust was enough for a 9x13 pan. Another is that a shortbread crust would taste better (butter and sugar - yum!). It was a hit! Strawberries any time are a treat, but especially in January!

And make sure you slather lots of whipped cream on top!

  
Making a wish and blowing out the candles.
 

I was very thankful for the lovely beginning to the week. 

Andy was admitted to the memory care facility as a 30 day respite patient. After the first 30 days, he rolled over into another 30 days while I tried to nail down my finances and how I was going to pay for his care. By Wednesday, I was ready to submit the application. When I did so, I was given a sheet with what I owed. I was a little unprepared for the shock of one-time, first month fees. So early Thursday morning, I had to call my financial agent to let him know I needed more money and how much. After work, he gave me a call to inform me I needed to sign some documents, then fax them to NWM for them to release the money I needed. I also needed to go to my bank to move some money around to keep my checks to Care One from bouncing until NWM got the money into my accounts. 

All this was on my mind...yes, I was very distracted. So as I got in my car to take care of these details, I forgot to open the garage door before I backed out. Ugh! Now I'm stuck and can't go anywhere. Fortunately, Andy's brother was here at the house with his mom and dad. I had to eat humble pie and ask Dan and his dad to see if they could open the garage door so I could get out. They worked on the door for about an hour to disassemble it before they were able to get it open. It was very bent and out of whack. 

Another fortunate detail is that I know someone from church who repairs garage doors. This is thanks to Andy who knew lots of people and their abilities and expertise. So I called him to tell him what I did and could he help. He said that would be easy to fix and he would come over to assess what needed to be done. After he was here, he said it wasn't as easy as what he thought and would require a little more - but it could be fixed. He is working on it right now and it's looking good!

It's hard to know how to answer people when they ask how Andy's doing. It's very meaningful to me that people ask - it's an indication that they care. The difficulty in answering, though, is that sometimes he's doing pretty well and other times, pretty bad. One day last week, he didn't feel well at all. He had diarrhea and severe tremors in his hand. Because of the tremors, he wasn't going to eat, so I fed him. 

The next night I visited, he was fixated on needing to call JH, with whom he had worked 20 years ago. He was determined he needed to talk to him about a project they were working on and was upset that someone was stealing from the job. I tried to distract him and tell him I would call JH later. But he was insistent that he needed to talk to him now. I finally got firm and said, "Andy, I'm not going to call JH." Then he was fine and dropped the subject. He was obviously anxious about this, though, and it was weighing on him because he had a hard time concentrating on my reading to him the rest of the evening. 

Another night, he told me with tears in his eyes, "I just want to go and be with Jesus." I agreed with him that that would be wonderful, then I played him a song I had recently purchased on itunes:

Soon
 Soon and very soon
My King is coming
Robed in righteousness and crowned with love
When I see Him
I shall be made like Him
Soon and very soon

Soon and very soon
I’ll be going
To the place He has prepared for me
There my sin erased
My shame forgotten
Soon and very soon

I will be with the One I love
With unveiled face I’ll see Him
There my soul will be satisfied
Soon and very soon

Soon and very soon
See the procession
The angels and the elders 'round the throne
At His feet I’ll lay my crowns My worship
Soon and very soon

I will be with the One I love
With unveiled face I’ll see Him
There my soul will be satisfied
Soon and very soon

Though I have not seen Him
My heart knows Him well
Jesus Christ the Lamb
The Lord of heaven

I will be with the One I love
With unveiled face I’ll see Him
There my soul will be satisfied
Soon and very soon
Soon and very soon
   2010 Hillsong Church T A Hillsong Music Australia  

I have been playing this song to myself once or twice (sometimes more) every day and it has really ministered to me to think of being with Jesus soon - the One I love. I'm so glad I was able to play it for Andy.

This month is our biggest month for birthdays. Asher's was Jan. 31 (almost Feb.), then Cole's is Feb. 1, Dawn's is Feb. 3, Kasey's is Feb. 8, Christy's is Feb. 11 and mine is Feb. 13. So of course, we had to celebrate. Everyone was able to come down yesterday for a meal together. We served two kinds of soups, homemade rolls, with carrot cake and ice cream. The kids had a lovely time playing together and the adults enjoyed conversation around the table. It was a great ending to a long day for me. 

My Saturdays tend to be pretty long. I get a lot done, but then it's done and I'm not sure what to do the rest of the day. After a while, I'm tired of reading, one or two games of Scrabble is enough, laundry is done...what else is there? So having a house full of kids and family is a perfect distraction. I no longer feel alone or lonely, and my house is far from quiet!

 

The Birthday People

I've been reading to Andy every night when I visit him. I started reading through the Psalms. I don't think he always understands what I'm reading. Sometimes he seems to, but other times he interrupts me with whatever he's "working" on. But I'm hoping that there are bits that sometimes sink in and register with him and bring him comfort. If not him, at the least, I'm gaining some comfort myself.

Tonight I was reading Psalm 46. "God is our refuge and strength, an ever-present help in trouble. Therefore we will not fear though the earth give way and the mountains fall into the heart of the sea, though its waters roar and foam and the mountains quake with their surging." (verses 1-3)

In Pastor's sermon this morning, he mentioned that the most often repeated command in Scripture is, "Don't be afraid," or "fear not." I remember him saying this in previous sermons, and it's a good reminder. God doesn't just give us this command and leave it at that, but he follows it up with, "for I am with you." 

And later in Psalm 46, the psalmist tells us to "Be still and know that I am God..." (verse 10) and in verse 11: "The Lord Almighty is with us." The great God who created the universe, then stooped down to shower us with his love and grace in the person of Jesus, His Son - that God is with me, guiding, directing, going with me every step of the way.