Tuesday, August 11, 2015

Alzheimer's Update

Life goes along and can become routine leading you to think everything is ok. I was wondering recently, trying to analyze Andy's Alzheimer's disease (AD). Is he about the same, getting worse, am I getting used to the way things are?  After some incidents this weekend, we have concluded that he is not getting better, and not even stabilizing.

On Saturday night, a friend arrived from PNG to spend a few months in this area as part of her home assignment (furlough). She has stayed in our apartment several times before, and we love having her here. She is cheerful and fun to have around.

 
 In preparation for her arrival, I decided the apartment needed a little bit of fixing up. L had hung a lot of pictures on the walls and left the nails, and consequently nail holes.  We had a bucket of wall spackle, so Andy and I took it upstairs and spackled all the holes in all the rooms. A day later, we sanded the spackle, then added a second coat. A couple days later, we painted over the spackle so the walls look new again.

Before Andy came down with AD, I could have sent him up there and told him what needed to be done. Now, I have to go with him and give him instructions every step of the way. In a way, I don't mind because I love being with him, and it feels good to be doing things together.

Another project we've been working on is outside yard work. There have been some moments of time recently with some cooler weather, so we've taken advantage and done some much needed weeding and bush/tree trimming. This is a project, again, that I need to be with him if I want the work done to my satisfaction. I know I can be a "fuss budget" and want things done my way, but if I send him out to do a job and don't go with him, he will invariably end up doing something completely different than what he went out for. Or he will come back and ask, "what did you want me to do?" So it really does work better for us to undertake our projects together.

He is losing some filters, too. As we were trimming one of the bushes, we did some bantering back and forth. I was teasing him about being too brutal by taking off too much (the poor bush!!!). Later that evening, he came to me and wanted to apologize for the way he treated me. At first, I didn't know what in the world he was talking about. But in probing, I finally figured out that he thought I was upset with him and the way he was working. 

He also is having some delusions. When we sit down for our dinner, he often asks where everyone is. Or he'll inquire, "is it only us tonight?" Or, "who else is here?" One morning he told me he didn't mean to embarrass me the night before. I didn't know what he was talking about until he said he shouldn't have said what he did with everyone in the room. There had been no one in the room, it had been only us. 

I have to say that even with all these changes and the progression of the disease, the Lord has given me peace and a heart at rest. This can only come from him and I'm very grateful for the peace that passes understanding.

I'm still reading Calm My Anxious Heart by Linda Dillow and the chapter I read last night was titled "Trusting God with the If Onlys." Here are some of the nuggets that were meaningful to me:

If we are to find contentment in the midst of trial and uncertainty, we must accept our situation as being purposely allowed into our lives by a personal and loving God. For most of us, this begins by refusing to contract the If Only disease.

There is an if in every life - something God could have done differently if he had chosen to do so. He has all power, yet He often allows that if to be there.
 
She gave the example of Martha greeting Jesus after her brother, Lazarus, had died. She said to Jesus, "Lord, if only you had been here, my brother would not have died." But as we know, Jesus had a bigger and better plan. He told Martha, "Did I not tell you that if you believed, you would see the glory of God?" (John 11).

We cripple ourselves spiritually by going over and over the If Onlys. We "catch" the If Only disease when we dwell on what we don't have instead of on what we do have. We become discontented with what God has given us. When we contract this disease, we lose perspective.

 At the end of the chapter, she quotes from a paper Andrew Murray had written in 1895 when he was suffering from a terribly painful back:

"In time of trouble, say, "First, he brought me here. It is by his will I am in this strait place; in that I will rest." Next, "He will keep me here in his love and give me grace in this trial to behave as his child." then say, "He will make the trial a blessing, teaching me lessons he intends me to learn, and working in me the grace he means to bestow." And last, say, "In his good time he can bring me out again. How and when, he knows." Therefore, say, "I am here (1) by God's appointment, (2) in his keeping, (3) under his training, (4) for his time."

 As reinforcement in these thoughts, this morning in New Morning Mercies, Paul Tripp wrote the same ideas. He gave examples of If onlys that we use to place blame on others or our circumstances for our disobedience or discontentment. But he goes on to assert:

If God is present with you everywhere you go (and he is), and if he is sovereign over every situation, relationship, and location of your life (and he is), then when you blame other people for your circumstances or for the wrongs that you do, you are, in fact, blaming God. You are saying that God didn't give you what you needed to be what he has called you to be and to do what he has called you to do.

So as I continue on this journey, traveling along the road of Alzheimer's and Parkinson's, I need to remember that this is the story God is writing for me. But he is not leaving me to my own resources, leaving me to grope blindly along. It is interesting to note that the many times, he tells his people to "fear not...don't be afraid," he includes the promise: "because I am with you."


I love Isaiah 43:1-3 - "Fear not, for I have redeemed you; I have summoned you by name; you are mine. When you pass through the waters, I will be with you; and when you pass through the rivers, they will not sweep over you. When you walk through the fire, you will not be burned, the flames will not set you ablaze. For I am the Lord, your God, the holy One of Israel, your Savior."

What a comforting promise from a wonderful God. 

Sunday, August 2, 2015

Autobiography or Biography?

My goal has been to post something about my week every Sunday afternoon, but I can tend to be obsessive/compulsive. The reason I post is for my own therapy and review of my week, but I'm not going to be legalistic about it. If I don't feel like posting, I'm not going to post just to post.

That said, the last two weeks have seen a plethora of emotions and experiences. A dear couple, who've been friends of ours for many years, were in the area last weekend. When I heard they were going to be here, I quickly arranged for them to join us for dinner. I had not entertained company for the last two years except for our immediate family. I was a little nervous as to how it would go. Would it tire Andy out? How would he do with conversation? 

I think the fact that things have become a little more manageable recently and have smoothed out, have helped in the stress level. I don't think Andy is necessarily better, maybe a little worse, but we've adjusted to the new normal. 

I thought having chicken on the grill would be fairly easy, so the week before our company, I had Andy show me how to operate the grill. We cleaned it up and made sure there was plenty of gas in the tank. He had always been the one to do the grilling, but I decided I needed to learn to do it. The recipe I have for the grilled chicken is super good and it's a lot easier to do it on the grill than heating up the oven - especially in the dead of summer.

So our menu for the evening was:  grilled chicken, tomato-zucchini casserole, Caesar's salad and chocolate chip zucchini bread. I did not serve dessert, but it wasn't needed. Everything turned out great and we had a wonderful time with our friends. They moved to Colorado 15 years ago so we don't see them very often. We were privileged to visit them twice on our trips through the west as we stopped to see several National Parks.

I  don't know if having the company took a toll but the next two days we were both beat. Tuesday, my day off, I had absolutely no energy or motivation. I managed to get the bathrooms cleaned and laundry done, but sat in my chair the rest of the time. 

Unfortunately, with the fatigue, I also experienced an emotional low. But as usual, God gave me the strength to endure. Then on Thursday, he graciously gave me two different times with friends who encouraged and prayed with me. One of those friends loaned me a book that I started reading: Calm My Anxious Heart by Linda Dillow. 

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I have really benefited from what I've read already with some good reminders for experiencing contentment no matter what the circumstances.

She lists a prescription for contentment:

* Never allow yourself to complain about anything - not even the weather.
* Never picture yourself in any other circumstances or someplace else.
* Never compare your lot with another's.
* Never allow yourself to wish this or that had been otherwise.
* Never dwell on tomorrow - remember that tomorrow is God's, not ours.




 

 

So I was encouraged on Thursday after meeting with loving friends. Friday was a good day. Then Saturday arrived and again I had no energy, felt so tired and sluggish. This was somewhat discouraging because Tuesdays and Saturdays are the days I'm home and always look forward to getting lots done. But not this week. I sat in my chair, resting and not worrying about work getting done or not getting done. In the midst of my exhaustion, I happened to look out the window and saw a gold finch at the bird feeder. This made me so happy. What a beautiful little bird - so yellow and cheerful. It felt like a gracious gift from God to cheer me up.


The bird feeder is out the front kitchen window. Then out the back kitchen window, the crape myrtle is currently in full bloom - just bursting with color - another gracious gift from God. The creation shouts the glory of God.


In spite of the fact that I was so tired yesterday, I decided to go ahead with our plan to have Kira stay overnight with us. She had been asking, so how could we say no? Besides, this would be fun and would add a little spice to our otherwise colorless lives! 

So we got her around 4:30 in the afternoon, had dinner together. Well, Andy and I ate dinner, she was too excited to eat. Then we watched a movie together before heading upstairs to bed.



Does she look happy? It was great fun to have her and I was reminded of the value Jesus places on children. They add such joy to our lives. What a blessing all our grandchildren are - and we have a lot!

I was reading in New Morning Mercies a couple of days ago and was struck by the concept that my story is not an autobiography, but a biography written by Another. Every turn he writes, every twist of the plot, every chapter is right, for the best and advances his purpose. 

Hosea 14:9: "Whoever is wise, let him understand these things; whoever is discerning, let him know them; for the ways of the Lord are right."

When I read a book, especially one that is exciting and suspenseful, I have a habit of reading the last page and sometimes even the last chapter - just to find out how it turns out. Then when I know everything turns out all right, I can relax and go back to read the rest of the book, enjoying each detail along the way.

When it comes to my own life, my story is being written by the Lord. But I can't read the end of my story. I must trust him in the middle of each twist and turn. Ultimately, of course, I do know that the end of the story of my life here on earth is the beginning of my eternal life. Although that is somewhat sketchy with a lot of unknowns, yet at the same time, it is a great comfort. And it gives me hope and peace to continue my journey. 

Sunday, July 19, 2015

The Law of the Jungle

I had a burst of energy and motivation this week, plus we had two days of beautiful summer weather. I was able to leave work an hour early on Thursday and two hours early on Friday. Andy and I worked outside weeding all the gardens around the house. Because of all the mature trees around the house, we worked mostly in the shade. It was so pleasant to be out there, pulling weeds and enjoying nature. There was a robin that kept singing providing background music to our work.

It's amazing how quickly weeds take over if the gardens go untended. I recently was reading A.W. Tozer's The Root of the Righteous. 
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One of the chapters in that book was entitled The Hunger of the Wilderness. He starts the chapter by quoting Dr. Harold C. Mason: "Man was made to dwell in a garden, but through sin he has been forced to dwell in a field, a field in which he has wrested from his enemies by sweat and tears, and which he preserves only at the price of constant watchfulness and endless toil. Let him but relax his efforts for a few years and the wilderness will claim his field again. The jungle and the forest will swallow his labors and all his loving care will have been in vain."

When we first moved into our house with its 3+ acres in 1991, that acreage was really a jungle. There was so much overgrowth in the front of the house, the poison ivy, honeysuckle and wild rambling roses reached as high as the roof. What a job to tear all that out. Then behind the house there was a virtual forest. I started clearing out vines and weeds and underbrush. When I got to a certain point, I was surprised to see that there was actually a run down shed in the middle of that jungle. I found some old pictures of what I dealt with.





It was nasty, back breaking, hot and exhausting work but I turned that jungle into a beautiful back yard. It was such a lovely spot that we were able to have Amy's graduation ceremony and party there and even a friend wanted to have her wedding out back.

 




It is difficult to keep our gardens and fields cultivated and free of weeds. They don't stay beautiful by themselves, but it takes a conscious effort to pull the weeds, fertilize, water and care for the garden. Tozer continues to warn us that "what is true of the field is true also of the soul, if we are but wise enough to see it...The moral bent of the fallen world is not toward godliness, but definitely away from it...The truth is that no spiritual experience, however revolutionary, can exempt us from temptation; and what is temptation but the effort of the wilderness to encroach upon our new-cleared field?"

Our souls require even more care because the devil is prowling about seeking someone to devour. He is waiting for us to let down our guard, to let discouragement overtake us, to get our eyes off the Lord, to focus on our circumstances, to do anything but trust the Lord and rely on his strength to carry us through.

I heard a new song this week that relates to growth. At least it was new to me and I love the words. I think it will be my new theme song: Thrive by Casting Crowns.


"Thrive"


Here in this worn and weary land
Where many a dream has died

Like a tree planted by the water
We never will run dry

 
So living water flowing through
God we thirst for more of You
Fill our hearts and flood our souls
With one desire

 
Just to know You and
To make You known
We lift Your name on High
Shine like the sun make darkness run and hide
We know we were made for so much more
Than ordinary lives
It's time for us to more than just survive
We were made to thrive

Into Your word we're digging deep
To know our Father's heart

Into the world we're reaching out
To show them who You are

So living water flowing through
God we thirst for more of You
Fill our hearts and flood our souls
With one desire

 
Just to know You and
To make You known
We lift Your name on High
Shine like the sun make darkness run and hide
We know we were made for so much more
Than ordinary lives
It's time for us to more than just survive
We were made to thrive

 
Joy Unspeakable, Faith Unsinkable, Love Unstoppable, Anything is possible
Joy Unspeakable, Faith Unsinkable, Love Unstoppable, Anything is possible
Joy Unspeakable, Faith Unsinkable, Love Unstoppable, Anything is possible
Joy Unspeakable, Faith Unsinkable, Love Unstoppable, Anything is possible

 
Just to know You and
To make You known
We lift Your name on High
Shine like the sun make darkness run and hide
We know we were made for so much more
Than ordinary lives
It's time for us to more than just survive
We were made to thrive

Hey!

We were made to Thrive

That's the cry of my heart, Lord, I don't just want to survive...I want to thrive. 

He gives us all we need for life and godliness: joy unspeakable, faith unsinkable, love unstoppable! What a God.

Sunday, July 12, 2015

A is for Asher

Okay...Asher turned 7 way back in January. So why did we wait so long to have him over? Well, with one thing and another...Andy was sick, had to reschedule...Asher wasn't sure he wanted to spend overnight with us...but after hearing about the fun his sisters had while here, he changed his mind. By that time, there were other kids to fit in to the schedule.

But we made up for lost time and managed to fit in a lot while he was here. I went up to get him, leaving work a little early on Friday afternoon. We got back in time for me to make 2 pizzas for dinner. While I was making the meal, Andy and Asher shot the bb gun at some targets they made.

I didn't get any pictures of that because I was busy inside, and they didn't stay outside long enough for me to get out there. I think they came in when they did because it was pretty hot.

After dinner we watched a movie, Mary Poppins. That one is a long one, and Andy didn't stay up till the end. Of course, we had to have our ice cream treat while watching. 


 
Then up to bed in our apartment, reading stories to bring on the sleepy eyes. The next morning was so pleasant and beautiful, we decided to go for a hike right after breakfast. We went over to Smithville Park and walked around the lake, then took a trail we had never tried before. 
 

 

The trail went up the hill and meandered along above the lake. The temperature was in the lower 70's with a gentle breeze. It was such a gorgeous summer morning, made all the more enjoyable by having a 7 year old boy along.

   


When we got back, Asher helped me make an apple dessert. He worked diligently and patiently at mixing the crumb topping to get it completely and thoroughly mixed while I peeled all the apples.



 After lunch we fit in some swimming at a neighbor's pool. Unfortunately, we didn't stay very long because there were some very bad bugs that kept biting Andy and Asher while they were in the pool.



 Asher wanted to ride bikes so I gave Andy permission to ride (ha, ha!). They rode to the church, around the parking lot, then back. I breathed a sigh of relief when they returned - that they were safe.


We had time for lots of games and silliness.




The rest of the family joined us for dinner, after which I read some stories to Claire. And she was happy to pose for pictures with Grammy and PopPop.


 


 It was a beautiful ending to a lovely day.

Sunday, July 5, 2015

Another Birthday to Celebrate

Another little person had a birthday last week and she turned 7 this year.  It was finally her turn to spend an overnight with Grammy and PopPop. Amy brought Joanna down on Monday afternoon (saving us a trip up). For some reason, the kids really like to watch movies at our house. And I have been collecting them over the years. I actually still have some videos from when our kids were little: some I had bought for the VCR and some we taped off the tv when we subscribed to the Disney channel (a very long time ago!).

We had never had Joanna by herself so it was fun to have her. She had made a list of things she wanted to do while here. The list was pictures because she doesn't spell yet. Of course, movies was on the list, but so were reading stories, baking a cake, eating ice cream and playing games. 

After dinner we got cozy on the couch to watch the movie she picked out.


"Grammy, don't take my picture!"


It was very hot on Tuesday so we didn't spend a lot of time outside except for a walk to the pond and back. Then after lunch, we all went over to Dawn's so Joanna could play with Kira for a while.



 
  


Too soon it was time to head on back to Lancaster County, returning Joanna to her family. Amy served us a delicious dinner, then Joanna opened her presents. She had waited somewhat patiently all day to find out what was inside the wrappings.




In my reading of Second Forgetting by Dr. Benjamin Mast, I picked up some helpful hints. There is a chapter in Dr. Mast's book on getting people with memory issues to talk about their memories. Usually, short term memory is the first thing that is affected in Alzheimer's but long term memory is much more available to the person. 

One of the things that makes Andy anxious is long drives on the turnpike. So I got the idea (actually, I think the Lord gave me the idea) to take along cd's of Andy and me singing. Years ago I had gone through archived church services and pulled off tapes where Andy and I were singing and had our sound guy make cd's of all our songs. Three cd's with a total of 53 songs. Granted they aren't all duets. There are 3 pieces of Christy playing piano, 1 of a flute solo, several of Dawn and me, and a couple with the whole family. What a trip down memory lane! Also, what a gift that the Lord gave me the opportunity to have this done. It was a treat to listen to them together - it made the trip a lot less stressful as we sang along and reminisced. We cringed at mistakes (they certainly weren't professionally done!) and were blessed by the messages of the songs. 


This was a big success for our trip to Berks County yesterday to spend the July 4th holiday with my brothers and sisters. It's a long trip with a 2 hour ride one way. We stayed long enough to eat lunch and talk to everyone. All my brothers, sisters, their spouses and my mother were there. We hadn't seen them since September. So it was good to catch up and give and receive hugs. We stayed 3 hours, then took the trip back. 

Needless to say, we're pretty tired out today but not stressed! Yeah!

We completed another puzzle. This one was quite challenging and took us about two weeks. 


 I must say I'm enjoying the puzzles and I think they are good brain exercise for Andy. He's a good sport, very patient and tries hard to find the right piece. Finishing is very satisfying.

Sunday, June 28, 2015

God's Gracious Hand

When Ezra led the exiles from captivity back to the land of Israel, he recognized God's leading in all their work as they rebuilt the temple and their homes. I want my own eyes to be open to the gracious hand of God providing in various instances.

He not only provides our needs, he also gives generously in things we prefer. Several months ago, an older lady at church (I say she's older, but truthfully, she's probably only a few years older than I am!) slipped into my hand a $50 gift card to Shop Rite as she was talking to me. Then at Easter we received a $100 gift card to Shop Rite from the older singles group that we had led several years ago. I used up the last few dollars on the card and I was talking to the Lord about it. I was perfectly content to not receive another card because I was using it to buy my favorite coffee creamer and Moose Tracks ice cream (luxuries!), but...

And here it is. God graciously and generously provided another $50 gift card to Shop Rite. The original older woman slipped it into my hand last Sunday while talking to us at church. He not only provides our needs, he also loves to give us all good things for our enjoyment. We're his beloved children.

For some time, we had been wanting to go hiking with our friends who are home from Bangladesh. We had to cancel a couple of weeks ago when Andy got sick, so rescheduled for this past Tuesday. Unfortunately, it was "wickedly" hot and humid. But we went anyway. Also unfortunately, the bugs were extremely annoying. We had to keep fanning and swatting near our faces to keep them away.

We went to the Rancocas State Park. H and S had never been there. The last time Andy and I had been there, it had been early spring before any trees had their leaves. This time, it looked so different. It was a good 3.2 mile hike and although, it was enjoyable to be out in nature, we were all glad to get back to the car and air conditioning.

The tide was in and the Rancocas "Creek" was delightful.



I was surprised to see trumpet vine flowers out there in the middle of the forest.



God's gracious hand has given us many friends and it was a blessing to spend time with them out in his beautiful world.

That evening, Andy and I were in our living room, when all of a sudden, his mom and dad rushed in and said they had announced on tv that a tornado was coming our way. They insisted that we all go the basement right away. So down we went. Dad had his camping lantern along, we got out the folding chairs and sat in the basement feeling very safe. We couldn't hear anything down there except an occasional thunderclap. My curiosity finally got the better of me, and I ventured upstairs to see what was going on out there. It was quite a storm with almost constant lightning and thunder. The wind was reported at 75 mph and it certainly was whipping the trees around. But again, the gracious hand of our God protected us from harm. We didn't even lose power, although homes less than a mile away did. We had some big branches come down, but they hit the ground and not the house or did any damage to our property.

Wires came down in the street in front of our house. They must have been cable wires because we didn't lose anything (phone, internet or electricity). Traffic was going gingerly by until the fire company came and moved the wires off the street.

The next morning dawned bright and clear. The humidity was relieved but there was a lot of storm damage for people to clean up.

  


The Lord also graciously provided a friend who offered to bring his chain saw and cut up the fallen branches. He not only cut them up, but loaded them on his truck and took them away, too.

On Wednesday, a couple took us out to lunch. While out with them, they told us that the seniors at church had taken up a collection for us. The amount:  $700!  Wow! The gracious hand of our God!

 I started reading a new book:  Second Forgetting. It is a book "remembering the power of the gospel during Alzheimer's Disease."

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The book was recommended at the bottom of an article I read by John Piper after Elizabeth Elliot's death. I ordered the book and am really enjoying it. It is insightful, helpful and offers hope for those suffering from Alzheimer's as well as the caregivers of those suffering from this disease. I can't recommend it highly enough. He offers helpful up-to-date information on the disease, but what I like most and am blessed by is his encouragement that though we forget God, he never forgets us.

He says on page 54:  "No matter what happens to you, God cannot and will not forget you. Remember this for your own comfort, but know that if you forget to remember, he will not."

On another page, he says:  "Our hope comes from a God who is stronger than Alzheimer's.  When we face the confusion and uncertainty of this disease, God calls us to remember him, and in his grace he provides us the ability to do so."

I was so ministered to by his quote of Randy Alcorn in A Prayer of Weariness. Every time I see Randy Alcorn's name, my interest is piqued because he and Andy were at seminary together. Randy was a year or two ahead of Andy, but it's still significant, right?! They rubbed shoulders and had several classes together.

The words to this prayer say it all for me.

A Prayer of Weariness
                 by Randy Alcorn

I AM WEARY, Lord… bone tired.prayer of weariness
Weary to the point of tears, and past them.
Your Word says you never grow weary;
But I know you understand weariness
Because once you drug a heavy cross
            up a long lonely hill.
Many times you had nowhere to lay your head—
And people who needed you pressed upon you
            by day and by night.
My reservoir is depleted, almost dry.
For longer than I can remember I’ve been
            Dredging from its sludgy underside
Giving myself and my loved ones the leftovers
            Of a life occupied with endless tasks.
The elastic of my life is so stretched out of shape
            that it doesn’t snap back anymore.
Just once I’d like to say “It is finished,” like you did.
But you said it just before you died.
I guess my job won’t be over till my life is
            and that’s OK Lord,
            if you’ll just give me strength to live it.
Deliver me from this limbo of half-life;
            Not just surviving, but thriving.
You who know all, You who know me
            Far better than I know myself—
Deposit to my account that as I spend myself
            There may be always more to draw from.
Give me strength
            To rest without guilt…
                        To run without frenzy…
                                    To soar like an eagle
Over the broad breathless canyons of the life
you still have for me both here and beyond.

This poem was originally published in 1986 in Women Under Stress by Randy and Nanci Alcorn. The thoroughly revised and updated Help For Women Under Stress, released in March 2013, is available exclusively from EPM.
This article originally appeared in the Winter 2011 issue of EPM's quarterly newsletter Eternal Perspectives.

So even when it seems I have nothing more to give, God continues to graciously provide for me and my needs. He gives me strength when I am weak and helps me go on when I think I'm at the end.

Yes, I can attest that the gracious hand of our God is upon me.